تاريخ النشر: 12/09/2018
الناشر: ثقافة للنشر والتوزيع
ينصح لأعمار بين: 3-6 سنوات
حمّل iKitab (أجهزة لوحية وهواتف ذكية)
نبذة الناشر:These short stories written by Megan Bryant, who has first-hand experienced of what it means to have a rare child, talk about the daily life experiences children affected by autoinflammatory diseases face. Autoinflammatory diseases are rare and can’t be cured. They can be treated but controlling the inflammation can be ...quite challenging. The inflammation of the internal organs is often debilitating and extremely painful.
This book is based around a girl and other children she meets, who are affected by the most common hereditary autoinflammatory disease called Familial Mediterranean Fever. In our eyes, they are little heroes because they have to overcome the severe pain caused by the disease, the fear of injections, countless blood extractions, hospitalizations, as well as missing out on birthday parties, school trips, holidays or just having a normal childhood. On top of this, the children and their families have to face the general lack of understanding there is because the pain cannot be seen. Autoinflammatory diseases is another type of disability most people don’t know about. It is referred to as an invisible disability.
This is a non-fiction book to which many children diagnosed with an autoinflammatory disease will hopefully be able to relate to and maybe make them feel that they are not alone. إقرأ المزيد